Showing posts with label #Alzheimer's. Show all posts
Showing posts with label #Alzheimer's. Show all posts

Monday, 30 January 2017

The Stars Want Her Back

When I first got to know her,
She was fully formed.
A woman with life, and humour and
Dreams.
And in the gaps between the dark times,
She talks about her dreams,
And all the reasons they never happened.
But now we have a fight on our hands,
For she is slowly leaking back
Bit by bit, thought by thought,
To where she came from.
For the stars want her back,
And there is nothing we can do.

bobby stevenson 2017

Friday, 7 October 2016

How I Was



It was only a few short summers between my mother asking,
‘how I was’ and her asking ‘who I was’.
It was only the briefest of moments between telling a friend,
‘See you soon’ and bowing my head in a farewell.
It seems only days between being a child and looking after one,
Between laughing and shouting, ‘I’m old’ and being old.
Surely the moon has only passed a few times since saying
‘tomorrow, I’m going to..’ and ‘yesterday, I meant to….’
It has only been a few short, warm wind, summers  since my mother asked me how I was.

bobby stevenson 2016

Thursday, 31 March 2016

A Letter To You

You know.
I know you know. It’s just whether you remember the facts or not. The thing is, I must have learned to write and then I learned to live. We kind of knew it was always going to be that way – didn’t we?
Am I getting ahead of myself? Probably. I was always getting ahead. So I’ll just start at the beginning like most people would.

Dear Me,
I am writing you a letter from your past - from our past. I have been to the doctor and he has told me. He said it in the most matter of fact way possible. He looked out of his window, asked did I want a glass of water, then turned and said ‘you have Alzheimer’s’.  I said ‘sorry’ and he said so was he, I then asked him to repeat himself. And as you know and I now know, I’ve got Alzheimer’s.

What am I like from where you are? Are you reading this, or perhaps some help has found it and is reading it to you? Or maybe they are reading it to themselves and wondering if they should read it to you.

I just wanted to write to you – well, me, the future me, a letter to say goodbye and to say I’m sorry. Was it something I did, something in my life that led us down this road of sorrow?

I wonder what went first? Did you start to forget the lovers, you and I once knew? I always was proud of myself that I could remember all their names. It was always a little exercise I did on dark days – to remember when love and life were easy. When I had enough offers to be careless with those who had said they loved me. Forgive me.

My fear is that you – well, me in the future will be talked about by strangers. They will look at me with pity and tears and forget how young and alive I once was. Please don’t let them talk about me. Please don’t let them say I am mad. I am not mad – am I’m only dying.
Something we will all do.

I remember one of my lovers said to me, that you should never judge a life by how it ends. I was alive once, I was a child, a kid, a teenager, a lover, a partner - but all of those things are dependent on being able to remember.
And my memories are being cruelly stolen, so that in the end I am nothing. More than nothing.
I am not feeling sorry for you or me, for I had a life and that is more than some souls get.

I just wanted to write and say I love you, I didn’t always love you – learning to love yourself takes a lifetime.

I hope you are happy in your dreams.

With all the love in the world,
Yourself, from all the way back here.
X


bobby stevenson 2016

The Last Cowboy (the start)

 
 
His spring and summer were now only dust on the bonfires of life, and as he looked out at the horizon, he knew more and more that it would no longer stretch on forever.
 
He had been young and vital once, and his dreams would have powered a city, but the lamps had dulled, and the curtains were drawn and it was going to be time up, one way or another.

Age had brought with it forgetfulness, and pains, and failing sight but he still felt each morning that he had to get up and show the universe that it should continue to invest in him – at least for one more day.

His daughter, his one and only little girl and her crummy husband, had found him, Jake, standing in car park looking for his automobile. The truth was Jake had walked there, the car was still safely lying in his garage.

It was his daughter who had made him go for the appointment to the clinic. She was a lovely woman – the doctor- and perhaps in other circumstances, they could have become friends. But it had been down to the woman to tell Jake (and his daughter and her crummy husband) that he had Alzheimer’s. And that was the goddamn beginning and end to it.

For the first few days it felt like he’d been hit by one of those Ford trucks, he’d always wanted to drive. Nothing seemed to fit into his world anymore and everything seemed to hurt.

Then one night in the second week he was watching some TV show where they were talking about dreams and how to live them. A middle-aged woman from a square state in the mid-west said her plan had been to write down all the childhood wishes that she had hoped for and maybe try and find them. The doctors had told her that she had cancer with an outlook of six months.

Was that more comforting than Jake’s diagnoses of ‘maybe years, maybe not’?

So that night when there was too much going on in Jake’s head, he got up and sat looking at the dawn and wrote what he had really wanted to do with his life.

Being a coal-miner had never been a plan of his – it had been force fed to him by a family that worried about most things and had wanted to see their family settle.

Jake had settled with a wife and two kids. His son was in the army and had returned home less and less until all Jake got was a phone call at Christmas. His daughter stayed close but he wasn’t ready for a home just yet, or for losing his independence.

His wife, Betty, God rest her soul, had taken a long time to fight the cancer and, in the end, had lost. But what a trooper – she had given that cancer a run for its money and no mistake. He missed her every second, of every minute, of every day. But at least he had gotten to know her and he took that blessing to bed with him every night.

So as Jake was sitting watching the orange sun start to invade his little porch, he wrote down the dreams he had as a kid and all of them, and I mean all of them, were all related to one thing – him, Jake Sheeny being a cowboy.

And right there and then Jake made his Goddamn mind up that he was going to sell his house (or maybe rent it out, he wasn’t too sure), sell his car, which he seemed to forget all the time, and buy a big damn horse and ride the highways as a cowboy.

Leastways until the darkness eventually overcame him – but until that day, which as the doctor said could be years, he was going go on the ride of his life.

And over the next few stories, I’m going to tell you about Jake, and how he joins a circus, and how he finds laughter, and perhaps the best friends a man can ever find – and most of all he finds love again.

The Last Cowboy will be here waiting when you’re ready. 
 
 
bobby stevenson 2016

Friday, 19 February 2016

The Man Who Never Was


Perhaps I brought all this on myself by staying away from the others, by hiding in my room and dealing with my own struggles rather than being a part of everyone and everything else.
Maybe this is a punishment or perhaps it is justified karma?

The process started just like it did when I began to lose my hair. I had looked in the mirror one day and there was a freckle on my head that I had not remembered seeing before. It wasn’t that it had suddenly presented itself but that the hair had begun to fall away and expose it. It said ‘things are changing’ but I also remember walking away from the mirror and telling myself I would leave that thought for another time. Yet delay doesn’t keep change at bay, you should know that by now. We should all know that by now.

It was snowing the first time I noticed, really noticed that is. I thought that the reflected light from the outside had somehow diluted my skin and that the usual healthy glow was there to be rediscovered in a warmer light. But alas it wasn’t - the paleness was me.

I sneaked into her room and stole some of the powder that she kept on her bed-side table. It shimmered a rusty-brown colour that made my face look as if I were whole again. I was me, once more, and apart from the odd comment about how well I was looking, no one noticed nor cared.

By the second week, my pallor had grown fainter still, so I searched the room for that lotion that gave the glow of a healthy sun tan. This, I spread over all my body, my hands, my feet and my head.
Whenever I left the house people would stare at me, and rightly so, it was the cold depth of winter and I looked orange. Better they stare at my orange-ness than what I had become.

There was no sense to any of this but denial does not stop the illness nor does it ward off the disease. This thing wasn’t just happening to me, it had become me. I was defined by it and would soon be known by it.

By the end of the second week I lifted my hand to stop the sun blinding me and it had little effect.

By the middle of Week three, I could no longer deny its existence, I was ill and it showed. Friends tried not to stare at it but in the end couldn’t help themselves. As I walked towards some colleagues I heard them mention ‘tracing paper boy’ and I knew immediately they meant me. I had become a joke.
If not me, what would have I made of the situation? Would I have wanted to work with a freak? Would I have been his confidant? Or rejected him?

Three days later and I could no longer see my hands, two days after that my arms went the same way. My family tried to make life continue as if everything was normal but I could see the sadness in my brother’s eyes as he watched me disappear.

By the start of week five people would only know me by my shadows.
You cannot see me anymore as I am not there, but once in a while you may catch a movement from the corner of your eye.

That is me. Think of me.

bobby stevenson 2016
www.alzheimers.org.uk/

Wednesday, 30 September 2015

One Day, My Friend, We'll Soar



One day, my friend, we’ll soar,
Far, high above these streets of darkened hearts,
We’ll tilt our wings to freedom,
And scrape the highest of the skies.

One day, my friend, we’ll soar,
Up there, all wrapped in splendid sunlight,
Riding azure blue jet streams,
Breathless with that rush of life and air.

One day, my friend, we’ll soar,
So let me take your broken body upon my back,
And both of us shall climb in painless flight,
I’ll let you rest up there, but promise I’ll be back.


bobby stevenson 2015



Monday, 17 August 2015

The Last Cowboy


The Beginning...

His spring and summer were now only dust on the bonfires of life, and as he looked out at the horizon, he knew more and more that it would no longer stretch on forever.

He had been young and vital once, and his dreams would have powered a city, but the lamps had dulled, and the curtains were drawn and it was going to be time up, one way or another.

Age had brought with it forgetfulness, and pains, and failing sight but he still felt each morning that he had to get up and show the universe that it should continue to invest in him – at least for one more day.

His daughter, his one and only little girl and her crummy husband, had found him, Jake, standing in car park looking for his automobile. The truth was Jake had walked there, the car was still safely lying in his garage.

It was his daughter who had made him go for the appointment to the clinic. She was a lovely woman – the doctor- and perhaps in other circumstances, they could have become friends. But it had been down to the woman to tell Jake (and his daughter and her crummy husband) that he had Alzheimer’s. And that was the goddamn beginning and end to it.

For the first few days it felt like he’d been hit by one of those Ford trucks, he’d always wanted to drive. Nothing seemed to fit into his world anymore and everything seemed to hurt.

Then one night in the second week he was watching some TV show where they were talking about dreams and how to live them. A middle-aged woman from a square state in the mid-west said her plan had been to write down all the childhood wishes that she had hoped for and maybe try and find them. The doctors had told her that she had cancer with an outlook of six months.

Was that more comforting than Jake’s diagnoses of ‘maybe years, maybe not’?
So that night when there was too much going on in Jake’s head, he got up and sat looking at the dawn and wrote what he had really wanted to do with his life.


Being a coal-miner had never been a plan of his – it had been force fed to him by a family that worried about most things and had wanted to see their family settle.
 

Jake had settled with a wife and two kids. His son was in the army and had returned home less and less until all Jake got was a phone call at Christmas. His daughter stayed close but he wasn’t ready for a home just yet, or for losing his independence.

His wife, Betty, God rest her soul, had taken a long time to fight the cancer and, in the end, had lost. But what a trooper – she had given that cancer a run for its money and no mistake. He missed her every second, of every minute, of every day. But at least he had gotten to know her and he took that blessing to bed with him every night.

So as Jake was sitting watching the orange sun start to invade his little porch, he wrote down the dreams he had as a kid and all of them, and I mean all of them, were all related to one thing – him, Jake Sheeny being a cowboy.

And right there and then Jake made his Goddamn mind up that he was going to sell his house (or maybe rent it out, he wasn’t too sure), sell his car, which he seemed to forget all the time, and buy a big damn horse and ride the highways as a cowboy.

Leastways until the darkness eventually overcame him – but until that day, which as the doctor said could be years, he was going go on the ride of his life.
And over the next few stories, I’m going to tell you about Jake, and how he joins a circus, and how he finds laughter, and perhaps the best friends a man can ever find – and most of all he finds love again.


The Last Cowboy will be here waiting when you’re ready.


bobby stevenson 2015
SEPTEMBER IS ALZHEIMER'S MONTH
http://www.alz.co.uk/world-alzheimers-month

Wednesday, 22 April 2015

The Last Cowboy (the start)




His spring and summer were now only dust on the bonfires of life, and as he looked out at the horizon, he knew more and more that it would no longer stretch on forever.
He had been young and vital once, and his dreams would have powered a city, but the lamps had dulled, and the curtains were drawn and it was going to be time up, one way or another.

Age had brought with it forgetfulness, and pains, and failing sight but he still felt each morning that he had to get up and show the universe that it should continue to invest in him – at least for one more day.

His daughter, his one and only little girl and her crummy husband, had found him, Jake, standing in car park looking for his automobile. The truth was Jake had walked there, the car was still safely lying in his garage.

It was his daughter who had made him go for the appointment to the clinic. She was a lovely woman – the doctor- and perhaps in other circumstances, they could have become friends. But it had been down to the woman to tell Jake (and his daughter and her crummy husband) that he had Alzheimer’s. And that was the goddamn beginning and end to it.

For the first few days it felt like he’d been hit by one of those Ford trucks, he’d always wanted to drive. Nothing seemed to fit into his world anymore and everything seemed to hurt.

Then one night in the second week he was watching some TV show where they were talking about dreams and how to live them. A middle-aged woman from a square state in the mid-west said her plan had been to write down all the childhood wishes that she had hoped for and maybe try and find them. The doctors had told her that she had cancer with an outlook of six months.

Was that more comforting than Jake’s diagnoses of ‘maybe years, maybe not’?

So that night when there was too much going on in Jake’s head, he got up and sat looking at the dawn and wrote what he had really wanted to do with his life.

Being a coal-miner had never been a plan of his – it had been force fed to him by a family that worried about most things and had wanted to see their family settle.

Jake had settled with a wife and two kids. His son was in the army and had returned home less and less until all Jake got was a phone call at Christmas. His daughter stayed close but he wasn’t ready for a home just yet, or for losing his independence.

His wife, Betty, God rest her soul, had taken a long time to fight the cancer and, in the end, had lost. But what a trooper – she had given that cancer a run for its money and no mistake. He missed her every second, of every minute, of every day. But at least he had gotten to know her and he took that blessing to bed with him every night.

So as Jake was sitting watching the orange sun start to invade his little porch, he wrote down the dreams he had as a kid and all of them, and I mean all of them, were all related to one thing – him, Jake Sheeny being a cowboy.

And right there and then Jake made his Goddamn mind up that he was going to sell his house (or maybe rent it out, he wasn’t too sure), sell his car, which he seemed to forget all the time, and buy a big damn horse and ride the highways as a cowboy.

Leastways until the darkness eventually overcame him – but until that day, which as the doctor said could be years, he was going go on the ride of his life.

And over the next few stories, I’m going to tell you about Jake, and how he joins a circus, and how he finds laughter, and perhaps the best friends a man can ever find – and most of all he finds love again.

The Last Cowboy will be here waiting when you’re ready. 


bobby stevenson 2015 

A Perfect Place To Be

Another new morning in Deal. I haven’t checked the telephone, and I sure as hell haven’t switched on the TV with all that news.   So I lie t...